Khadijah Wallace, Kentucky Cancer Program East

Kristal Vaughan, RN, Quality Assurance Coordinator for the Markey Cancer Center Affiliate Network (MCCAN). I work with the eastern region of the state.

Eugenia Smither Bluegrass Care Navigators

Debbie Carey, CSW, OSW-C, Quality Assurance Coordinator for the Markey Cancer Affiliate Network (MCCAN)

Melissa Karrer, Kentucky CancerLink

Connection

Keeping up

Resources

Getting updates on what is going on around the state to help survivors.

updates/information

Solutions

supporting each other

Support

Expanding this topic in my region.

Connection and advocacy

providing the BEST we can for the survivors of KY

https://www.kycancerneeds.org/

Thanks for help on the KCC Cancer Survivorship SeriesStephanie Boone UofLJessica Burris UKJean Edwards UKTodd Burus UK CIONatalie Riney UK CIOKristal Vaugh UK MCCANSabrena Fulkerson UK MCCANDebbie Carey UK MCCANCrystal Labbato Baptist Health

https://www.kycancerc.org/2022/02/

I'm not sure that I have seen them - but they look great!

yes

yes

Yes, I've seen them, but have not gone into them in depth. Looks aMAzing!

Training for my staff

Start discussion with staff about survivorship needs and programming.

Training/education for volunteers

Build other programs

Developing community programs.

Give this info to new patients. Because at first we are like a deer in the headlights!

And we will discuss that during our digital storytelling next! Major need!

And this will be part of the Cancer Plan discussion and a strategy there!

This will be great, we are becoming so digitally focused this will be very well received by a good portion of survivors

Very impressed with this program especially for the underserved in rural communities!

Thanks!

https://www.storycenter.org/public-health-human-services

Being a survivor myself that’s also the what I describe as the “stages” of a diagnosis

Yes I was told when completing my treatment and having asked when I could consider myself a survivor. My Oncology Nurse said the moment you were diagnosed.

friend4life.org "Facing cancer, with someone who's been there"

Absolutely

Exactly

Friend for Life Cancer Support Network provides matched peer-to-peer emotional support for any form of cancer. Connections can be over the phone, text, email, etc.

Our volunteers are cancer survivors and caregivers trained to provide this support. So, Rudy, we're available.

A great resource for Survivorship Providers: https://thecspn.org/about/

1. Integrate the stories into educational materials used in training physicians, patient navigators, oncology social workers, and other public health providers – possibly even in educating administrators or other policy makers on the needs of cancer survivors.2. Integrate the stories into educational programming, communications, and conversations with cancer survivors and their families (3. Use the digital stories to help recruit and expand the network of peer supports and have them at community health clinics and cancer centers ready to talk4. Build out a public website that explains the project and outlines best practices for how to share and use these digital videos in a respectful and appropriate way. As I mentioned, a really good model for how to do that with minimal work is this instructional handbook which was developed to accompany the videos that feature breast cancer survivors.

GO2 For Lung Cancer has patient support services. Online and through help line. Buddy program, online community,

Lung Cancer Support Community - Stages | Facebook

I especially like #3 in your list Elaine. I think hearing from a survivor the testimony of how being vulnerable helped their outcomes is so important. As a social worker, I can encourage them to sign up for a service, but hearing it first hand has a different tone.

I am a part of Kentucky LEADS Survivorship and we are preparing to study how cancer affects people in rural areas in Kentucky. We are hoping to implement the research in 2023.

Elaine.Russell@uky.edu

https://www.cancer.org/treatment/survivorship-during-and-after-treatment.html

https://static1.squarespace.com/static/55368c08e4b0d419e1c011f7/t/62b0f6871742ae386921c3b5/1655764616968/HBOC+Stories+Discussion+Materials+FINAL-compressed.pdf

Cancer survivors and caregivers

Same for me

Helping get information in the hands of physicians and staff who interact with patients. I'm hoping to build some networking processes with oncology social workers in KY in 2023, so that would be a venue as well.

Same here

Yes! There are all kinds of trials and ways to be a part of research.

I have to jump off for another meeting. Thank you all. Appreciate the work you do.

I think words as well!

QOL is kind of a medical term that many patients may not understand

are you defining Palliative Care as end of life care or as supportive care starting at diagnosis

Embed definitions in the subject at hand on the same page.

Think even a video information is helpful or series on education and meanings

I would like to be involved in the survivor & caregiving

As a part of KCP, I think the items in the Public section are more in my wheelhouse.

I used to work in public outreach and public policy prior to nurse navigation

NCCN

CSPN - cancer survivorship provider network

I did not

Local health departments

COC

got to run to another meeting....good job all!

What day is the December meeting for this series? It's not on my calendar yet...

Thank you!

Great work everyone! Thank you!

KCC MeetingDecember 8, 2022 | 12:00 pm – 2:00 pm EST | Register here

https://redcap.uky.edu/redcap/surveys/?s=4WMRCCX4DXDKM4NP

Thank You everyone, great work.

Thank you all. Happy holidays!

THank you!