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KCC Survivorship Network Meeting - Shared screen with speaker view - Recording 2/2
Khadijah Wallace, Kentukcy Cancer Center East, Markey Cancer Cen
39:49
Khadijah Wallace, Kentucky Cancer Program East
Kristal Vaughan
39:56
Kristal Vaughan, RN, Quality Assurance Coordinator for the Markey Cancer Center Affiliate Network (MCCAN). I work with the eastern region of the state.
esmither
39:57
Eugenia Smither Bluegrass Care Navigators
Deborah Carey
40:30
Debbie Carey, CSW, OSW-C, Quality Assurance Coordinator for the Markey Cancer Affiliate Network (MCCAN)
Melissa Karrer
40:31
Melissa Karrer, Kentucky CancerLink
Maggie Motley
40:57
Connection
Jane Morgan
41:13
Keeping up
Priscilla Schwartz, Passport Health Plan
41:16
Resources
Wynona Padgett - KCP Lake Cumberland RCCS
41:21
Getting updates on what is going on around the state to help survivors.
John Kim
41:32
updates/information
Melissa Karrer
41:34
Solutions
Christine Stroebel
41:35
supporting each other
juliewaters
41:42
Support
Jeff Russell KY Cancer Program East- Cumberland Valley
41:52
Expanding this topic in my region.
Scott Kindred (Stages)
42:03
Connection and advocacy
Amy Oliver-Steinkuhl
42:12
providing the BEST we can for the survivors of KY
Todd Burus
53:08
https://www.kycancerneeds.org/
Elaine Russell
56:33
Thanks for help on the KCC Cancer Survivorship SeriesStephanie Boone UofLJessica Burris UKJean Edwards UKTodd Burus UK CIONatalie Riney UK CIOKristal Vaugh UK MCCANSabrena Fulkerson UK MCCANDebbie Carey UK MCCANCrystal Labbato Baptist Health
Elaine Russell
57:39
https://www.kycancerc.org/2022/02/
Melissa Karrer
58:00
I'm not sure that I have seen them - but they look great!
Jeff Russell KY Cancer Program East- Cumberland Valley
58:04
yes
Mary Schneider KY Cancer Progam East
58:12
yes
Judy Kasey-Houlette
58:32
Yes, I've seen them, but have not gone into them in depth. Looks aMAzing!
Melissa Karrer
58:52
Training for my staff
Deborah Carey
59:20
Start discussion with staff about survivorship needs and programming.
Judy Kasey-Houlette
59:21
Training/education for volunteers
Melissa Karrer
59:24
Build other programs
Wynona Padgett - KCP Lake Cumberland RCCS
59:38
Developing community programs.
Nancy Alvey
01:00:18
Give this info to new patients. Because at first we are like a deer in the headlights!
Jennifer Knight
01:06:08
And we will discuss that during our digital storytelling next! Major need!
Jennifer Knight
01:09:12
And this will be part of the Cancer Plan discussion and a strategy there!
Amy Oliver-Steinkuhl
01:12:35
This will be great, we are becoming so digitally focused this will be very well received by a good portion of survivors
Rudy
01:14:00
Very impressed with this program especially for the underserved in rural communities!
Pamela Hull
01:14:37
Thanks!
Jennifer Knight
01:15:58
https://www.storycenter.org/public-health-human-services
Scott Kindred (Stages)
01:32:27
Being a survivor myself that’s also the what I describe as the “stages” of a diagnosis
Nancy Alvey
01:33:46
Yes I was told when completing my treatment and having asked when I could consider myself a survivor. My Oncology Nurse said the moment you were diagnosed.
Judy Kasey-Houlette
01:38:20
friend4life.org "Facing cancer, with someone who's been there"
Scott Kindred (Stages)
01:38:21
Absolutely
Scott Kindred (Stages)
01:39:45
Exactly
Judy Kasey-Houlette
01:40:17
Friend for Life Cancer Support Network provides matched peer-to-peer emotional support for any form of cancer. Connections can be over the phone, text, email, etc.
Judy Kasey-Houlette
01:40:51
Our volunteers are cancer survivors and caregivers trained to provide this support. So, Rudy, we're available.
Maggie Motley
01:40:55
A great resource for Survivorship Providers: https://thecspn.org/about/
Elaine Russell
01:40:59
1. Integrate the stories into educational materials used in training physicians, patient navigators, oncology social workers, and other public health providers – possibly even in educating administrators or other policy makers on the needs of cancer survivors.2. Integrate the stories into educational programming, communications, and conversations with cancer survivors and their families (3. Use the digital stories to help recruit and expand the network of peer supports and have them at community health clinics and cancer centers ready to talk4. Build out a public website that explains the project and outlines best practices for how to share and use these digital videos in a respectful and appropriate way. As I mentioned, a really good model for how to do that with minimal work is this instructional handbook which was developed to accompany the videos that feature breast cancer survivors.
Robin Mohon/ GO2 Foundation
01:42:18
GO2 For Lung Cancer has patient support services. Online and through help line. Buddy program, online community,
Scott Kindred (Stages)
01:42:46
Lung Cancer Support Community - Stages | Facebook
Deborah Carey
01:43:17
I especially like #3 in your list Elaine. I think hearing from a survivor the testimony of how being vulnerable helped their outcomes is so important. As a social worker, I can encourage them to sign up for a service, but hearing it first hand has a different tone.
Nancy Alvey
01:44:19
I am a part of Kentucky LEADS Survivorship and we are preparing to study how cancer affects people in rural areas in Kentucky. We are hoping to implement the research in 2023.
Jennifer Knight
01:46:00
Elaine.Russell@uky.edu
juliewaters
01:46:46
https://www.cancer.org/treatment/survivorship-during-and-after-treatment.html
Elaine Russell
01:48:23
https://static1.squarespace.com/static/55368c08e4b0d419e1c011f7/t/62b0f6871742ae386921c3b5/1655764616968/HBOC+Stories+Discussion+Materials+FINAL-compressed.pdf
Melissa Karrer
02:03:48
Cancer survivors and caregivers
Judy Kasey-Houlette
02:03:58
Same for me
Deborah Carey
02:04:05
Helping get information in the hands of physicians and staff who interact with patients. I'm hoping to build some networking processes with oncology social workers in KY in 2023, so that would be a venue as well.
Nancy Alvey
02:04:09
Same here
Deborah Carey
02:13:26
Yes! There are all kinds of trials and ways to be a part of research.
Deborah Carey
02:15:56
I have to jump off for another meeting. Thank you all. Appreciate the work you do.
Maggie Motley
02:16:27
I think words as well!
Maggie Motley
02:16:45
QOL is kind of a medical term that many patients may not understand
Amy Oliver-Steinkuhl
02:18:38
are you defining Palliative Care as end of life care or as supportive care starting at diagnosis
Jeff
02:22:51
Embed definitions in the subject at hand on the same page.
Scott Kindred (Stages)
02:26:42
Think even a video information is helpful or series on education and meanings
Amy Oliver-Steinkuhl
02:27:03
I would like to be involved in the survivor & caregiving
Wynona Padgett - KCP Lake Cumberland RCCS
02:27:24
As a part of KCP, I think the items in the Public section are more in my wheelhouse.
Maggie Motley
02:27:49
I used to work in public outreach and public policy prior to nurse navigation
Maggie Motley
02:28:36
NCCN
Jennifer Knight
02:31:06
CSPN - cancer survivorship provider network
Lisa Stump, MSN, RN, OCN, CPHQ
02:31:18
I did not
Kristal Vaughan
02:31:47
Local health departments
Maggie Motley
02:31:53
COC
Rudy
02:32:09
got to run to another meeting....good job all!
Maggie Motley
02:33:28
What day is the December meeting for this series? It's not on my calendar yet...
Maggie Motley
02:34:22
Thank you!
Judy Kasey-Houlette
02:34:54
Great work everyone! Thank you!
Amanda Beckett
02:34:58
KCC MeetingDecember 8, 2022 | 12:00 pm – 2:00 pm EST | Register here
Amanda Beckett
02:35:14
https://redcap.uky.edu/redcap/surveys/?s=4WMRCCX4DXDKM4NP
Scott Kindred (Stages)
02:35:32
Thank You everyone, great work.
Amy Oliver-Steinkuhl
02:35:34
Thank you all. Happy holidays!
Brenda Burns, St Elizabeth Cancer Center
02:35:41
THank you!