Andrea Slone & Evan HackneyKentucky Health Collaborative

Miranda Harrison

Elizabeth Anderson-Hoagland, KDPH 🥱

Jennifer Knight, UK College of Public Health and Kentucky Cancer Consortium. 🥰

Ashley Shemwell, Nurse Navigator for Owensboro Health Lung cancer screening program

Jessica Burris, University of Kentucky 🙃

Shannon Baker, American Lung Association 😀

Wynona Padgett, KCP-East :)

Miranda Harrison Georgetown Community Hospital/Clark Regional/Bourbon/Bluegrass

Judy Kasey-Houlette, Friend for Life Cancer Support Network, 🙂, good so far!

Courtney Blair, MCC☺️

Jeff Russell KCP East 😔

Ellen Schroeder, ACS

Ellen Hahn, BREATHE, University of Kentucky College of Nursing

Pam Temple Kentucky Cancer Program😛

Good morning, everyone. Tim Mullett, Markey Cancer Center

Leigh Ann Holt

Sue Thomas-Cox KDPH 😇

Debbie Carey, UK Markey Affiliate Network. 😎

Angie Timmons, Kentucky Cancer Program 😊

Leigh Ann Holt. Kings Daughters Medical Center

Kristy Young, ACS CAN

Sarojini Kanotra, KDPH 😎

Tim Laugh - Mitchell Memorial Cancer Center

Colleen Toftness, KY Women's Cancer Screening Program😄

Natalie Wilhite Markey Cancer Center Community Impact Office 😊

If you are joining us, put your name, organization and using an emoji, tell us how your week is going!

Kyle Kuykendall - BREATHE

Angela Criswell, GO2 Foundation for Lung Cancer 🤪

Jamie Smith Kentucky Cancer Program

Kate Jones, UK KCC 🙂

Jamie Studts, University of Colorado Cancer Center (via the University of Kentucky and the University of Louisville)

Angie Combs, KCP-East ☺️

😎 forgot my emoji

Deb Campbell, Ky Hospital Assn Busy, but what's new?

Charles Colvin - Baptist Health

Kristian Wagner, KY Cancer Consortium🙂

Hilary Deskins, Leo Cancer Care

Heather Shaw, Kentucky Tobacco Prevention and Cessation Program

Lee Ann Taylor, University of Kentucky, College of Nursing, BREATHE/KCSP

Jack Hillard/ kentucky Cancer Foundation

Audrey Darville UK College of Nursing/BREATHE

Sandra Añez PowellBilingual Community Outreach and Virtual Event RepresentativeAnthem, Kentucky Medicaid13550 Triton Park Blvd. Louisville, Kentucky 40223M (502) 735-2590sandra.powell2@anthem.com :D

Kris Damron, Markey Cancer Center Research Network

Trey Alexander, MCC Research Network

Rudy Bess-Hope Light Foundation

Mary Schneider KCP EAST

Robin Mohon GO2 Foundation for Lung Cancer

If you are just joining us include an emoji that explains how your week is going along with your name and organization! 🙂

🤯😵‍💫😜

🙃 Connie Buckley - Norton Healthcare Cancer Institute

Elizabeth Goode, Kentucky Department for Public Health

☺️ Laura Chowning, WellCare Health Plans of KY

😀

Mindy Rogers, Kentucky Cancer Program-East 🤸

Please include questions - aha moments or say more in the chat…!

Priscilla Schwartz, Passport Health Plan

Elizabeth G - you are mixed! Impressive handstand, Mindy!

Khadijah Wallace, Kentucky Cancer Program, East

KCC Cancer Survivorship Serieshttps://www.kycancerc.org/2022/02/22/cancer-survivorship-series/

Elizabeth Westbrook,

Elizabeth Westbrook, KCP UofL

Miranda Sloan, Kentucky Society of Clinical Oncology😀

Melissa Karrer - Kentucky CancerLink 😎

KY Cancer Needs Assessmentwww.KYCancerNeeds.org

Jamie Knight, KCP West 😊

WOW

Yes, Sandra. Indeed!

Delana Gilkey, Cancer Control Specialist with KCP West & Kentucky African Americans Against Cancer (KAAAC)

Where is the source for the digital info?

https://www.whitehouse.gov/briefing-room/statements-releases/2022/02/14/fact-sheet-biden-harris-administration-announces-10-million-households-enroll-in-broadband-affordability-program-thanks-to-bipartisan-infrastructure-law/

Thank you!

I can only stay on a few minutes; I apologize

Thanks for sharing, Jamie! I wonder how easy it is to enroll in this program.

@Jennifer--programs just announced--not sure about the procedures yet. Someone else may know much more.

We are happy to have you as long as you can be here Representative Prunty! Please include questions and know you will get access to the recording after the meeting.

If you have questions, now is a great time to put them in the chat.

In our cancer survivor patient population at Markey, 23% of adults who walk through the door reported cigarette smoking or other tobacco use in the month prior to their visit.

Telehealth and internet availability do not translate into access. My wife was told recently she didn't qualify for a telehealth visit.

So this aligns pretty well with the BRFSS data, @Jessica.

Yes, great point, Jeff. Telehealth implementation post-COVID is an important consideration. @Angela Criswell, perhaps you can include as part of insurance conversation if we have time!

Jeff Russell, what reason was your wife given for not qualifying for telehealth? Curious.

Yes, we can include discussion about telehealth, if there is time today.

The Just Ask initiative is critically important. Thank you for your leadership, Tim!

https://www.facs.org/quality-programs/cancer-programs/pdsa-just-ask/

^^ Commission on Cancer Just ASK Quality Improvement Project

Vitally important work that is truly impacting cancer care across the country

Please send website in email; very curious about what is embedded in EMR; needs to be spread throughout the medical/healthcare world!!

That isn’t turned on; didn’t quite catch it

Woohoo! Go Beattyville!

Center for Connected Health Policy--offers state-by-state information on telehealth policies. Here's a link to Kentucky's page: https://www.cchpca.org/kentucky/

Jeff, Yes, that is an important point that a lot of people miss. We actually have more detailed data that addresses this disconnect, but it's tricky to read and explain so we don't typically include it in these big group conversations. Two resources that are great at exploring this are a set of tools available at https://pcrd.purdue.edu/data-analysis/tools/ and a new modeling approach discussed at https://www.williamrinehart.com/2022/broadband-mapping-machine-learning/

Good job everyone!

Thanks, Wynona. You are a great advocate for our community.

Way to go! Working together is making a difference!

This is great!

Grassroots and grass tops engagement made all the difference!

Congratulations to Louisville and Somerset and all the partners who contributed to the effort!

Thank you, Deborah!

We have new opportunities to recruit!!

This is going to be great for our Cancer Plan update too!

Add any questions or areas you would like more information on to support your work!

So complete!!

This library program is brilliant! Have Louisville libraries been approached?

feel free to contact me to help reach out to the Spanish speaking community Sandra.powell2@anthem.com

Awesome work, BREATHE Team!

Link to our ordinance database: https://www.uky.edu/breathe/tobacco-policy/smoke-free-communities/Kentucky-Smoke-free-Ordinance-Database

Wow! Great work, BREATHE! Look how many projects and partners it takes! 🤯

Link to our TTS page: https://www.uky.edu/breathe/tobacco-treatment/tobacco-treatment-specialist-training

Thanks for including these links Lee Ann!

@HilaryDeskins We first need to learn what it takes to promote radon testing in libraries. Once we learn more we hope to promote it more broadly. Thank you for your interest. Stay tuned.

sign me up for that meeting!!

And the impact to so many different cancers

I am there with you @KristyYoung

Sign me up, Kristy!

Thanks, Ellen. Please let me know how I could help.

new messaging might be in order, too. thanks to ellen and team for a lot of work on that already

Have to drop off for another meeting. Looking forward to the recording.

Got to go for another meeting....Rudy

Thank you, Kristy! Keep up the important advocacy leadership. Looks like morefolks are joining you.

I also need to add that Allison Adams with Foundation for a Healthy KY played a big role advocating for funding this year as well. We will keep trying!

@KyleHolyman HB77 says the EPA SIRG funds will be controlled by the board, made up mostly of industry folks, administered by PPC. How will this impact the radon program at KDPH?

Data visualization specialist work - AARST. 🙂

Thi sis a great slide on policies, Kyle!

Radon Report card:

https://aarst.org/report-card/

Awesome info, Kyle!

@KyleHoylman Of the 7-member board, only one person is a health person. Do you know who that will be?

How will the health messaging for radon be ensured in the PPC as that is not what they do?

the radon report card is very interesting

The disability data is still REALLY striking to me.

Always appreciate use of KyBRFS data

Disability data is concerning.

KCC is responsible for recommending 3 persons to Governor Beshear to serve in this seat, Ellen.

When we started the KCC Lung Cancer Network (late 2013), KCP Road tours and KY LEADS Collaborative work - lots of working together is making an impact!

….but the national national decline is only 4%, and Kentucky is ~10%

Woohooo, Jamie! Excellent clarifying point!

We have A LOT Of screening capacity in Kentucky!

Given the decades-long rate of 80% plus, this is Kentucky transforming our lung cancer burden, which will translate into incredible reductions in lung cancer mortality.

@KyleHoylman I sent an email to set up a time to talk with you about keeping the public health focus of our state radon program. Moving the mitigation certification to PPC seems like a great idea. Building our public health focus on primary and secondary prevention related to radon is crucial!

We have a new Operative Standard established for lung cancer that will lead to improvement in surgical quality in early stage lung cancer.

Now we must focus more on EQUITABLE and QUALITY lung cancer screening

On Radon policy, there is definitely an opportunity to work together toward ensuring the best implementation possible of the new policy.

Great news, Tim!

Yes, Jamie - equity and quality are both essential!

As a reminder, the person-first language recommendations can be found here: https://www.iaslc.org/iaslc-news/press-release/iaslc-releases-iaslc-language-guide-lexicon-healing-lung-cancer-and-beyond

We're on the same page, Ellen. Our focus on public protection remains the top priority. I'll look forward to catching up with you soon!

@Angela--thanks for acknowledging the great catch on her person-first language! Kudos

yes!!

Lung-RADS was a great save, but the loss of the registry is a major loss and threat to quality implementation.

Always unintended consequences…

They say what they have already said…!

Keep them at the top of the list! Wow…

This is really cool @Angela, I can't wait to see the 2022 word cloud

More data visualization! Go Angela! 🙂

Devastating lack of attention to ADHERENCE as the VITAL pathway toward benefitting from LDCT

Disgusting

Absolutely disgusting--virtually guaranteeing low quality LDCT that lacks centralization, which has been consistently shown to achieve quality

glad to help!

So many battles to fight from all fronts. Let's keep up the good work and partner together.

To follow up on Jamie's comment--comprehensive lung cancer screening programs help drive higher adherence rates (though adherence levels nationwide remain concerningly low). Here's why this matters--CISNET modeling shows that the mortality benefit of lung cancer screening declines by half when adherence levels fall below 50%.

This is a sad time for LC patients like myself and more importantly, present patients.

...and even 50% adherence is aspirational--the national data show an annual adherence of 22%.

just want to highlight the most important and exciting tobacco control action at the federal level in recent history! fda has announced proposals to remove menthol flavored cigarettes and flavored cigars from the market. if you're able, please join and share the advocacy effort in support!! https://action.lung.org/site/Advocacy?cmd=display&page=UserAction&id=8538

Thank you for the update, Shannon!

If anyon else has updates or things to share, please put in the chat!

See our Op Ed on the FDA proposal re: menthol in the CJ today: https://www.courier-journal.com/story/opinion/2022/05/12/taking-action-ban-menthol-cigarettes-flavored-cigars-saves-lives/9728569002/.

Thank you, Ellen!

Just what we are working on today!

Long before 2009 we were still at 81%

Among our Screening Centers of Excellence who completed our annual data survey last year, one in five of them indicated their annual adherence rate was at or above 75%, and half indicated an adherence rate above 50%, but there are still many struggling--13% said they don't even measure this data point. We are aiming to change that.

Not surprise!!

I am glad we are changing that!! YEA!!!

Wow! Look at the partnerships!

@Angela, I appreciate the value of that data, but we have to qualify that a bit--those are self-reported by sites that don't appreciate the differences between different components of adherence, and they are a very selected sample of sites that have sought Center of Excellence certification.

@Jamie, I agree...there isn't uniformity in how adherence is measured, what timeframe counts as "adherent." To attempt to be more precise, we did ask them separately about adherence to annual repeat screening (which is the data I mentioned) and adherence to interval follow-up. This data definitely represents a niche of programs committed to best practices in screening implementation, and the fact that there are struggles within these programs so publicly committed to high quality screening shows that this is an issue that has deep and wide implications.

@Angela, I think it does help highlight that individual and population health benefits from lung cancer screening have the twin challenge/opportunity--uptake and adherence, and any efforts that focus on one at the exclusion of the other is likely to be quite suboptimal.

And the KHC has the attention of Hospital/Health System CEOs which is incredible. Leadership interest makes a huge difference in support and implementation of high quality lung cancer screening!

While there will continue to be folks who see SDM as a barrier to LDCT, those people do not appreciate that the value of SDM is for ADHERENCE and helping participants understand that they are unlikely to benefit from lung cancer screening by participating once, but are much more likely to benefit if they participate in the full lung cancer screening process.

Thank you all for your tireless work to bring Lung Cancer screening, diagnosis, treatment and hopefully cure to the forefront and make such an impact on this disease.

Great discussion in the chat - we have lots of important things to dig into further - adherence! quality! equity! continued collaboration!

How can KCC Lung Cancer Network help support the utility of this new entity

Absolutely, Jamie!

For sure!! Staff is essential for moving forward!

https://apps.legislature.ky.gov/record/22rs/hb219.html

Can the KCC nominate potential members?

@ElizabethGoode will any of the lung cancer funding be allocated to tobacco control prevention and treatment?

Thanks to all! I have a noon call. Great work on this legislation!

Great session - thanks to all!

Thank you, KCC. I appreciate the opportunity to hear from everyone.

@Ellen, those funds should absolutely be used to support the integration of primary risk reduction into lung cancer screening programs, including smoking, second-hand smoke, and radon...

Great information and updates that are important to our District work. Thank you all for the great work you do!

great meeting! thank you!

consistent with quality lung cancer screening